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Research Article

Complexity in Non-Pharmacological Caregiving Activities at the End of Life: An International Qualitative Study

  • Olav Lindqvist mail,

    olav.lindqvist@ki.se

    Affiliations: Research and Development Unit in Palliative Care, Stockholms Sjukhem Foundation, Stockholm, Sweden, Department of Learning, Informatics, Management and Ethics, Medical Management Centre, Karolinska Institutet, Stockholm, Sweden, Department of Nursing, Umeå University, Umeå, Sweden

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  • Carol Tishelman,

    Affiliations: Research and Development Unit in Palliative Care, Stockholms Sjukhem Foundation, Stockholm, Sweden, Department of Learning, Informatics, Management and Ethics, Medical Management Centre, Karolinska Institutet, Stockholm, Sweden, Faculty of Health Sciences, La Trobe University, Melbourne, Australia

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  • Carina Lundh Hagelin,

    Affiliations: Department of Learning, Informatics, Management and Ethics, Medical Management Centre, Karolinska Institutet, Stockholm, Sweden, Sophiahemmet University College, Stockholm, Sweden

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  • Jean B. Clark,

    Affiliation: Education and Research Unit, Arohanui Hospice, Palmerston North, New Zealand

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  • Maria L. Daud,

    Affiliation: Pallium Latinoamérica, Buenos Aires, Argentina

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  • Andrew Dickman,

    Affiliation: Marie Curie Palliative Care Institute Liverpool, University of Liverpool, Liverpool, United Kingdom

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  • Franzisca Domeisen Benedetti,

    Affiliation: Center for Palliative Care, Cantonal Hospital St. Gallen, St. Gallen, Switzerland

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  • Maren Galushko,

    Affiliation: Department of Palliative Medicine, University Hospital Cologne, Cologne, Germany

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  • Urska Lunder,

    Affiliation: University Clinic for Respiratory and Allergic Diseases Golnik, Golnik, Slovenia

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  • Gunilla Lundquist,

    Affiliations: Department of Radiation Sciences—Oncology, Umeå University, Umeå, Sweden, Palliative Team Västerbergslagen, County Council of Dalarna, Ludvika, Sweden

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  • Guido Miccinesi,

    Affiliation: Clinical and Descriptive Epidemiology Unit, Cancer Prevention and Research Institute, Istituto per lo Studio e la Prevenzione Oncologica, Florence, Italy

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  • Sylvia B. Sauter,

    Affiliation: Research and Development Unit in Palliative Care, Stockholms Sjukhem Foundation, Stockholm, Sweden

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  • Carl Johan Fürst,

    Affiliations: Research and Development Unit in Palliative Care, Stockholms Sjukhem Foundation, Stockholm, Sweden, Department of Oncology-Pathology, Karolinska Institutet, Stockholm, Sweden

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  • Birgit H. Rasmussen,

    Affiliation: Department of Nursing, Umeå University, Umeå, Sweden

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  • on behalf of OPCARE9
  • Published: February 14, 2012
  • DOI: 10.1371/journal.pmed.1001173

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