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Research Article

Psychosocial Factors That Shape Patient and Carer Experiences of Dementia Diagnosis and Treatment: A Systematic Review of Qualitative Studies

  • Frances Bunn mail,

    f.bunn@herts.ac.uk

    Affiliation: Centre for Research in Primary and Community Care, University of Hertfordshire, Hatfield, Hertfordshire, United Kingdom

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  • Claire Goodman,

    Affiliation: Centre for Research in Primary and Community Care, University of Hertfordshire, Hatfield, Hertfordshire, United Kingdom

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  • Katie Sworn,

    Affiliation: Social Policy Research Unit, University of York, York, United Kingdom

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  • Greta Rait,

    Affiliation: Research Department of Primary Care and Population Health, UCL Medical School, London, United Kingdom

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  • Carol Brayne,

    Affiliation: Department of Public Health and Primary Care, University of Cambridge, Cambridge, United Kingdom

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  • Louise Robinson,

    Affiliation: Institute for Ageing and Health, Newcastle University, Newcastle upon Tyne, United Kingdom

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  • Elaine McNeilly,

    Affiliation: Centre for Research in Primary and Community Care, University of Hertfordshire, Hatfield, Hertfordshire, United Kingdom

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  • Steve Iliffe

    Affiliation: Research Department of Primary Care and Population Health, UCL Medical School, London, United Kingdom

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  • Published: October 30, 2012
  • DOI: 10.1371/journal.pmed.1001331

About the Authors

Frances Bunn, Claire Goodman, Elaine McNeilly
Centre for Research in Primary and Community Care, University of Hertfordshire, Hatfield, Hertfordshire, United Kingdom
Katie Sworn
Social Policy Research Unit, University of York, York, United Kingdom
Greta Rait, Steve Iliffe
Research Department of Primary Care and Population Health, UCL Medical School, London, United Kingdom
Carol Brayne
Department of Public Health and Primary Care, University of Cambridge, Cambridge, United Kingdom
Louise Robinson
Institute for Ageing and Health, Newcastle University, Newcastle upon Tyne, United Kingdom

Corresponding Author

Email: f.bunn@herts.ac.uk

Competing Interests

CB is a member of the Editorial Board of PLOS Medicine, and LR received an honorarium from Pfizer for an expert lecture. The authors declare that no other competing interests exist.

Author Contributions

Conceived and designed the experiments: FB CG SI GR CB LR KS. Analyzed the data: FB KS EM. Wrote the first draft of the manuscript: FB. Contributed to the writing of the manuscript: FB CG SI GR CB LR KS EM. ICMJE criteria for authorship read and met: FB CG KS GR CB LR EM SI. Agree with manuscript results and conclusions: FB CG KS GR CB LR EM SI. Wrote the protocol: FB CG GR CB LR SI. Undertook thematic analysis: FB KS EM. Results of the thematic analysis were critically reviewed by all authors.